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Baker, J.R., Crudder, S.O., Riske, B., Bias, V. and Forsberg, A. (2005) A Model for a Regional System of Care to Promote the Health and Well-Being of People with Rare Chronic Genetic Disorders. American Journal of Public Health, 95, 1910-1916.
https://doi.org/10.2105/AJPH.2004.051318

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