TITLE:
Social Aspects of the Quality of Life of Persons Suffering from Schizophrenia
AUTHORS:
Gitte Lee Mortensen, Jayanti De, Mads Holme, Tina Neve, Per Göran Torell, Jonas Eberhard
KEYWORDS:
Schizophrenia, Quality of Life, Socio-Cultural Aspects, Patient Perspectives, Qualitative Research
JOURNAL NAME:
Open Journal of Psychiatry,
Vol.6 No.1,
December
29,
2015
ABSTRACT: Background: Several studies have shown that persons with schizophrenia (PWS) suffer from severely
reduced quality of life (QoL). Impaired social functioning is a defining characteristic of
schizophrenia (SZ) and social cognition deficits affect interpersonal relations and outcomes such
as independent living, vocational functioning and employment status. Some studies have demonstrated
important socio-cultural aspects of SZ, for instance by examining experiences of SZ in different
developing countries and among minority groups in the Western world. The socio-cultural
context is central to understanding patients’ experiences in any society, however. Using an anthropological
approach, we use qualitative research methods to examine patient perspectives on
SZ. Sampling and Methods: In-depth qualitative interviews are carried out with SZ patients in
France, the UK and the USA representing diversity in Western mental health systems. Results: To
the participants, the most important QoL aspects are close relations and support from loved ones,
a safe home and comfort zone, and meaningful daily activities. Normalisation and independence
act as central themes to patients’ QoL and hopes for social integration. The participants need a
buffer zone consisting of social relations, a home and daily occupation that is flexible and may
balance issues of equality/inequality, abnormality/normality, and dependence/independence.
Conclusion: By using participatory methods, PWS may be involved in shaping their own treatment
and recovery plans based on what is subjectively meaningful and beneficial to their mental health.
QoL and functioning are closely linked to the socio-cultural context in which health care structures
go hand in hand with health care cultures that shape patients’ expectations and preferences.