Problem-Solving Based Intervention for Informal Caregivers: A Scoping Review

Abstract

Background: Caregiving for someone is a huge task for informal caregivers. The caregiving role is often challenging and overwhelming for them. Stress, burden, and depression have been frequently identified as the negative caregiving experiences. This systematic review synthesized the available evidence for the problem-based intervention provided for caregivers as there is little insight about the effects of problem-based intervention on caregivers. Objectives: To describe: 1) the design of problem-solving intervention; 2) the effects of problem-solving intervention for caregiver outcomes. Methods: This review followed Arksey and O’Malley’s methodological framework for conducting scoping reviews which entail setting research questions, selecting relevant studies, charting the data and synthesizing the results. FPRISMA guidelines were adopted and several databases were searched including MEDLINE; EMBASE; web of science. This review contains literature from 2012 to 2019 on problem-solving-based intervention which intended to caregivers. Results: 41 publications representing 27 unique problem-based interventions. Problem-solving-based intervention has different extent effects on caregiver emotion status, burden and quality of life. Conclusions: Problem-solving intervention is promising in caregiver intervention which could reduce caregiver depression, anxiety and burden.

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Tao, Q. and Zhang, J. (2019) Problem-Solving Based Intervention for Informal Caregivers: A Scoping Review. Open Journal of Nursing, 9, 951-971. doi: 10.4236/ojn.2019.99071.

1. Introduction

Caregivers play a crucial role in supporting ill, disabled or older people. However, being a caregiver is challenging and overwhelming so that many caregivers feel unprepared for their role [1] . Moreover, caregivers are usually at higher risk for poorer physical and mental health as compared to their non-caregiving counterparts [2] [3] [4] . The global prevalence of depression and anxiety is 40.2%, 21.4% among stroke caregivers, respectively [5] . Caregivers of other conditions also have the varying extent of depressive symptoms and anxiety symptoms [4] [5] [6] . In addition, Caregivers experience substantial physical, financial, and psychosocial burden, as a result of providing help to their care recipients [7] [8] .

Fortunately, there are interventions that try to alleviate the harms of caregiving outcomes. Growing evidence has demonstrated the benefit of problem-solving-based intervention [9] . Problem-solving intervention is a self-directed process that aims at identifying possible solutions for specific problems encountered in one’s daily life. [10] [11] . This approach is compromised by the following steps, problem definition and formulation, generation of alternative strategies, decision making and implementation. After practicing this step, caregivers tend to employ positive coping styles and have more problem-solving abilities which contribute to positive caregiver outcomes [12] .

Efforts have been made to review the effect of problem-solving intervention on patients [13] , there is still a gap in reviewing problem-solving intervention targeted at caregivers. Scoping review usually aims to collect and critically analyses various research studies and look for gaps in existing literature [14] . Thus, this study aims to conduct a scoping review to identify the design of problem-solving intervention and the effects of problem-solving intervention on caregiver outcomes.

2. Methods

This study employs a scoping review following the guidance of Arksey and O’Malley’s methodological framework [14] . This framework is helpful to contribute to the rigor and transparency of the scoping review methodology and helps to enhance the reliability of the findings [14] . The five steps outlined by Arskey and O’Malley’s [14] framework are: 1) Identifying the research questions, 2) Identifying relevant studies, 3) Study selection, 4) Charting the data and, and 5) Collating, summarizing and reporting the results.

2.1. Framework Stage 1: Identifying the Research Question

The research questions of this scoping review were: 1) how have problem-based intervention for caregivers been developed and delivered? (e.g., design, content and delivery mechanism) 2) what’s the effectiveness of problem-solving based intervention designed for caregiver with their health outcomes?

2.2. Framework Stage 2: Identifying Relevant Studies

Relevant studies were searched using EMBASE, CINAHL, Web of science from 1 January 2000 to 22 May 2019 for original articles. The literature search was conducted by searching terms of (Problem-solving therapy OR Problem solving OR Problem-focused OR Problem-solving skills OR Problem-solving training OR Problem-solving treatment OR PST) AND (caregiver OR carer OR informal caregiver OR family caregivers).

2.3. Framework Stage 3: Study Selection

Studies were included if they met the following inclusion criteria: 1) wrote in English; 2) undertook experimental design; 3) focused on caregivers of elderly people; 4) delivered a problem-solving based intervention. Studies were excluded: 1) studies focused on caregivers to pediatric patients; 2) studies focused on paid or formal caregivers; 3) unpublished dissertations, reviews, nonexperimental studies. Two reviewers independently conducted the searching and screening.

The searching identified 1000 literature for consideration. After duplications were eliminated, there are 565 abstracts left for further identification. Finally, after the abstract and full-text screening, forty-one papers representing 27 unique interventions were included in this review. A flow chart of the research search is displayed in Figure 1.

2.4. Framework Stage 4: Charting the Data

The key information relating to the intervention were systematically extracted the following information for each study: author; year of publication; country; study design; caregiver population characteristics (mean age, health professional occupation, hours of caregiving for informal caregivers, diagnoses for which the patient is receiving care); sample size; intervention and control (when applicable) characteristics (material covered and hours of instruction); and outcome measures (physiological and non-physiological).

Figure 1. Flow chart of the search strategy.

2.5. Framework Stage 5: Collating, Summarizing and Reporting the Results

This review employed a narrative synthesis of the included interventions to answer the research questions. Analysis of the studies was developed inductively, focusing on how THE problem-solving intervention on caregivers’ outcomes. This data analysis was taken through an interactive process of combining, categorizing, summarizing and comparing information across studies. The summative findings are in accordance with the study questions. This study did not conduct a quality assessment or limit inclusion of studies based on their methodological rigor because including a wide range of literature are best-suited to get a more complete overview of the literature.

3. Results

3.1. Results of the Search

Problem-solving interventions which delivered to caregivers of any adult in need of care were screened in this review. Of the 27 interventions representing 41 articles, 24 employed randomized control design, two of them involved randomizing in blocks [15] [16] . Other interventions incorporated one group of before-after design [17] , matched cohort design [18] - [22] . Samples used in the 27 interventions ranged from 6 [17] to 514 [23] . The selected studies included interventions targeting mainly on caregivers of people with dementia, stroke, traumatic brain injury, cancer and mental illness. Most of the interventions were delivered in USA, while the rest of interventions took place in Canada, Australia, Hongkong, and Iran.

These interventions target at caregivers of many kinds of condition, including caregivers of cancer (N = 4/4), dementia (N = 4/4), mental illness (4/5), traumatic brain injury (M = 4/4) and others. Details of the intervention group are shown in Table 1. Most of the interventions a combination of face to face and telephone, while others used face to face, telephone, web alone. Few interventions delivered in group. Numbers of sessions ranged from 3 [23] [24] [25] to 12 [23] [24] [25] . Details about the intervention design are provided in Table 2.

3.2. Problem Solving Intervention Effects on Caregiver Outcomes

In accordance with the guideline of scoping review, this article did not appraise these interventions for methodological rigor. Therefore, the quality of studies is not available. The results displayed are a synthesis of what has been reported in preview studies. Nine kinds of results were reported

3.2.1. Caregiver Mood Status

Mood status for caregivers often reported with depression incidence, depression level, anxiety. Most problem-solving based intervention delivered to caregivers resulted in reduced depression level and anxiety level [16] [21] [23] - [32] . One RCT revealed that delayed incidence of depression [30] .

Table 1. Study outcome measurements.

3.2.2. Caregiver Burden

Although lack of consensus amongst studies on how problem-solving intervention affected caregiver burden, there are still significant resulted in caregiver burden after completion of intervention [15] [26] [30] [32] - [37] . Reductions in subjective and objective burden were observed in one study of dementia caregivers [35] .

3.2.3. Quality of Life

Of all the interventions measuring quality of life, two interventions of 3 articles indicated that caregivers gained enhanced quality of life benefiting from the intervention [23] [33] . A problem-solving education intervention for caregivers of people received found better health outcomes, fatigue [19] [20] [21] .

Table 2. Summary of articles included in the study.

Notes: IG = intervetnion group; CG = control group.

3.2.4. Problem Solving

Some studies view problem-solving as moderator or mediator factor, while some intervention views it as outcome variable.

4. Discussion

As far as we know, this is the first scoping review which has endeavored to synthesize studies on problem-solving based intervention for family caregivers without focusing on one single illness of caregiving recipient. Specifically, this article described the details of each intervention design, the impact on caregiver outcomes. In total, 41 references representing 27 unique problem-solving-based intervention were included. Most interventions were targeted at caregivers of cancer, traumatic brain injury, mental illness caregivers and other conditions.

The interventions aimed to improve a wide range of caregiver outcomes by providing different delivery form, intervention duration. Of all the reported outcomes, caregiver mood, burden, quality of life and problem solving were the mostly common outcomes. Findings were mixed in terms of how problem-solving interventions impacted caregiver outcomes.

Existing research has highlighted the significance of providing support to enhance caregiver adaption [57] [58] . Of the promising interventions, problem-solving is promising in obtaining positive caregiver outcomes [9] . As compared to usual care or attention control, problem-solving intervention delivered no matter face-to-face, telephone, web or combined, have achieved enhancement in caregiver adaption. Evidence highlights the use of combination of face-to-face and telephone when delivering intervention [9] because this kind of delivery mode may be economic and has the advantage of building relationship with caregivers.

This review indicated inconsistent results among the intervention effects on caregiver outcomes. A meta-analysis would give greater power to analysis the potential effects pertaining to depression and perhaps even quality of care and burden. Meta-analysis to review the effects of problem-solving may also provide the opportunity for rigorous analysis of between-illness differences in caregiver outcomes. There are limitations in this scoping review, including the English language restriction and the start-date for the search that was set. Maybe there are some possible studies published in languages other than English and published prior to 2000.

This study reviewed the growing body of intervention describing the details of problem-solving intervention, effects on caregiver outcomes. Most of the problem-solving intervention delivered to caregivers of dementia, traumatic brain injury, cancer, mental illness and aimed to improve a range of health outcomes for family caregivers. Problem-solving interventions were provided based on basic steps of problem-solving. Most studies reported reduced caregiver burden, decreased depression and enhanced quality although few studies did not show significant results. This review highlights that caregiver needs to be supported and problem-solving intervention may be potential to enhance caregiver experience. Future studies are wanted to employ problem-solving intervention to support caregivers.

5. Conclusion

This study reviewed the growing body of literature regarding problem-solving intervention delivered to caregivers. Most subjects of the problem-solving interventions are dementia caregivers, cancer caregivers. The frequently reported outcomes for caregivers are mood status, caregiver burden, quality of life and coping. The review revealed that problem-solving interventions are promising for negative outcomes of caregiving, although there lacks the effect on caregiver positive outcome, like benefit, benefit of caregiving. With studies consistently evaluating problem-solving intervention, this may be an opportune time to conduct a meta-analysis or systematic review to better-evaluate the impact of problem-solving interventions on caregiver’s outcome.

Conflicts of Interest

The authors declare no conflicts of interest regarding the publication of this paper.

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