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Assessing the Relationship between Caregivers Burden and Availability of Support for Family Caregivers’ of HIV/AIDS Patients in Calabar, South East Nigeria

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DOI: 10.4236/wja.2013.34043    3,322 Downloads   4,921 Views   Citations

ABSTRACT

Purpose: This study examined the level of burden and the extent of support on family caregivers of people living with AIDS (PLWHA) in Calabar, South East Nigeria. Methods: A mixed method with cross sectional approach was used. Purposive sampling technique guided the recruitment process and data collection methods included, semi-structured questionnaires and focusing group discussion. 260 respondents participated in the study. The quantitative data were mined with the aid of SPSS and the qualitative data were analysed with the aid of NVivo8 using thematic analysis. Results: Results indicated high level of burden with limited support to caregivers. A Chi-square value of 25.1 was obtained at P < 0.05, suggesting a significant relationship between availability of support and caregivers burden. This relationship was supported by the themes of physical, social, emotional and financial burden for the caregivers. Similarly, information on coping skills, emotional support, financial assistance and help with caregiving themes emerged for social support. Conclusion: In Nigeria, the burden of caring for HIV/AIDS patients has a remarkable impact on family caregivers. This calls for the development of policies that can systematically address the needs of family caregivers in order to ameliorate the negative consequences of caregiving for PLWHA.

 

Conflicts of Interest

The authors declare no conflicts of interest.

Cite this paper

E. Asuquo, J. Etowa and P. Adejumo, "Assessing the Relationship between Caregivers Burden and Availability of Support for Family Caregivers’ of HIV/AIDS Patients in Calabar, South East Nigeria," World Journal of AIDS, Vol. 3 No. 4, 2013, pp. 335-344. doi: 10.4236/wja.2013.34043.

References

[1] M. Smith and J. Segal, “Caregiving Support and Help,” 2013.
http://www.helpguide.org/elder/caring_for_caregivers.htm#family
[2] L. Burton, “Age Norms, the Timing of Family Role Transitions, and Intergenerational Caregiving among Aging African American Women,” The Gerontologist, Vol. 36, No. 2, 1996, pp. 199-208.
http://dx.doi.org/10.1093/geront/36.2.199
[3] R. Schulz and L. Martire, “Family Caregiving of Persons with Dementia Prevalence, Health Effects, and Support Strategies,” American Journal of Geriatric Psychiatry, Vol. 12, No. 3, 2004, p. 3.
[4] R. Montgomery, J. Rowe and K. Kosloski, “Book Chapter: Family Caregiving,” In: C. J. A. Blackburn and C. N. Dulmus, Eds., Handbook of Gerontology: EvidenceBased Approaches to Theory, Practice and Policy, John Wiley & Sons, New York, 2007.
[5] National Alliance for Caregiving (NAC) and AARP, “Caregiving in the US,” 2009.
http://www.caregiving.org/data/04finalreport.pdf
[6] F. Abasiubong, E. Bassey, O. Ogunsemi and J. Udobang, “Assessing the Psychological Well-Being of Caregivers of People Living with HIV/AIDS in Niger Delta Region, Nigeria,” AIDS Care, Vol. 23, No. 4, 2011, pp. 494-500.
http://dx.doi.org/10.1080/09540121.2010.516340
[7] M. E. Kurtz, J. C. Kurtz, C. W. Given and B. A. Given, “A Randomized, Controlled Trial of a Patient/Caregiver Symptom Control Intervention: Effects on Depressive Symptomatology of Caregivers of Cancer Patients,” Journal of Pain and Symptom Management, Vol. 30, No. 2, 2005, pp. 112-122.
http://dx.doi.org/10.1016/j.jpainsymman.2005.02.008
[8] E. F. Asuquo, P. Adejumo, J. Etowa and A. Adejumo, “Fear of HIV Susceptibility Influencing Burden of Care Among Nurses in South-East Nigeria,” World Journal of AIDS, Vol. 3, No. 3, 2013, pp. 231-238.
http://dx.doi.org/10.4236/wja.2013.33031
[9] A. Larson, P. Fox, S. Rosen, M. Bii, C. Sigei, D. Shaffer, F. Sawe, M. Wasunna and L. Simon, “Early Effects of Antiretroviral Therapy on Work Performance: Preliminary Results from a Cohort Study of Kenyan Agricultural Workers,” AIDS, Vol. 22, No. 3, 2008, pp. 421-425.
http://dx.doi.org/10.1097/QAD.0b013e3282f3cc0c
[10] USAIDS, “Impact on Society,” 2013.
http://sciencenow.unaids.org/2008/06/23/impact-on-society/
[11] WHO, “More Developing Countries Show Universal Access to HIV/AIDS Services Is Possible,” News Release, 2010.
http://www.who.int/mediacentre/news/releases/2010/hiv_universal_access_20100928/en/index.html
[12] UNAIDS, “Global Report: UNAIDS Report on the Global AIDS Epidemic,” 2012.
[13] “(UNAIDS) Caregiving in the Context of HIV/AIDS,” Joint United Nations Programme on 2012 HIV/AIDS, 2008.
http://www.un.org/womenwatch/daw/egm/equalsharing/EGM-ESOR-2008-BP.4%20UNAIDS_Expert%20Panel_Paper_%20Final.pdf
[14] J. Bock, “Grandmothers’ Productivity and the HIV/AIDS Pandemic in Sub-Saharan Africa,” Journal of CrossCultural Gerontology, Vol. 23, No. 2, 2008, pp. 131-145. http://dx.doi.org/10.1007/s10823-007-9054-2
[15] M. Bevans and E. Sternberg, “Caregiving Burden, Stress, and Health Effects among Family Caregivers of Adult Cancer Patients,” JAMA, Vol. 307, No. 4, 2012, pp. 398-403. http://dx.doi.org/10.1001/jama.2012.29
[16] J. Robison, R. Fortinsky, A. Kleppinger, N. Shugrue and M. Porter, “A Broader View of Family Caregiving: Effects of Caregiving and Caregiver Conditions on Depressive Symptoms, Health, Work, and Social Isolation,” Journals of Gerontology Series B: Psychological Sciences and Social Sciences, Vol. 64B, No. 6, 2009, pp. 788-798.
http://dx.doi.org/10.1093/geronb/gbp015
[17] L. Feinberg, S. Newman, L. Gray and K. Kolb, “The State of the States in Family Caregiver Support: A 50 State Study,” Family Caregiver Alliance, San Francisco, 2004.
[18] J. Wolff and J. Kasper, “Caregivers of Frail Elders: Updating a National Profile,” Gerontologist, Vol. 46, No. 3, 2006, pp. 344-356.
http://dx.doi.org/10.1093/geront/46.3.344
[19] Y. Kim, R. Schulz and C. S. Carver, “Benefit-Finding in the Cancer Caregiving,” Psychosomatic Medicine, Vol. 69, No. 3, 2007, pp. 283-291.
http://dx.doi.org/10.1097/PSY.0b013e3180417cf4
[20] U. Stenberg, C. M. Ruland and C. Miaskowski, “Review of the Literature on the Effects of Caring for a Patient with Cancer,” Psycho-Oncology, Vol. 19, No. 10, 2010, pp. 1013-1025.
http://dx.doi.org/10.1002/pon.1670
[21] L. I. Pearlin, J. T. Mullan, S. Semple and M. M. Skaff, “Caregiving and the Stress Process: An Overview of Concepts and Their Measures,” The Gerontologist, Vol. 30, No. 5, 1990, pp. 583-594.
http://dx.doi.org/10.1093/geront/30.5.583
[22] L. Etters, D. Goodall and B. E. Harrison, “Caregiver Burden among Dementia Patient Caregivers: A Review of the Literature,” Journal of the American Academy of Nurse Practitioner, Vol. 20, No. 8, 2008, pp. 423-428.
http://dx.doi.org/10.1111/j.1745-7599.2008.00342.x
[23] P. Werner, M. Mittelman, D. Goldstein and J. Heinik, “Family Stigma and Caregiver Burden in Alzheimer’s Disease,” The Gerontologist, Vol. 52, No. 1, 2011, pp. 89-97. http://dx.doi.org/10.1093/geront/gnr117
[24] J. Grad and P. Sainsbury, “Mental Illness and the Family,” Lancet, Vol. 1, 1963, pp. 544-547.
http://dx.doi.org/10.1016/S0140-6736(63)91339-4
[25] S. H. Zarit, K. E. Reever and J. Bach-Peterson, “Relatives of the Impaired Elderly: Correlates of Feelings of Burden,” Gerontologist, Vol. 20, No. 6, 1980, pp. 649-655.
http://dx.doi.org/10.1093/geront/20.6.649
[26] Family Caregiver Alliance, “Women and Caregiving: Facts and Figures,” 2003.
http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=892
[27] R. H. Fortinsky, H. Tennen, N. Frank and G. Affleck, “Health and Psychological Consequences of Caregiving,” In: C. Aldwin, C. Park and R. Spiro, Eds., Handbook of Health Psychology and Aging, Guilford, New York, 2007, pp. 227-249.
[28] J. S. Rolland, “Families, Illness, & Disability: An Integrative Treatment Model,” Basic Books, New York, 1994.
[29] T. Habib and S. Rahman, “Psycho-Social Aspects of AIDS as a Chronic Illness: Social Worker Role Perspective,” Antrocom Onlus, Vol. 6, No. 1, 2010, pp. 79-89
[30] J. Grater, “The Impact of Health Care Provider Communication on Self-Efficacy and Care-Giver Burden in Older Spousal Oncology Caregivers,” Ph.D. Thesis, University of Pittsburgh, Pittsburgh, 2005, p. 121.
[31] P. Thoits, “Social Support as Coping Assistance,” Journal of Consulting and Clinical Psychology, Vol. 54, No. 4, 1986, pp. 416-423.
http://dx.doi.org/10.1037/0022-006X.54.4.416
[32] ANON, “What Is Caregivers’ Burden and What Causes It?” 2009.
www.agingincanada.ca/What_is_caregiver_burden.htm
[33] M. Chambers, A. Ryan and S. Connor, “Exploring the Emotional Support Needs and Coping Strategies of Family Carers,” Journal of Psychiatric and Mental Health Nursing, Vol. 8, No. 2, 2001, pp. 99-106.
http://dx.doi.org/10.1046/j.1365-2850.2001.00360.x
[34] C. Klienke, “Coping with Life Challenges,” Wadsworth, California, 1991.
[35] J. S. Greenberg, M. M. Seltzer, M. W. Krauss and H. Kim, “The Differential Effects of Social Support on the Psychological Well-Being of Ageing Mothers of Adults with Mental Illness or Mental Retardation,” Family Relations, Vol. 46, No. 4, 1997, pp. 383-394.
http://dx.doi.org/10.2307/585098
[36] W. Haley, E. Levine, S. Brown and A. Bartolucci, “Stress, Appraisal, Coping and Social Support as Predictors of Adaptational Outcome among Demential Caregivers,” Psychology and Ageing, Vol. 2, No. 4, 1987, pp. 323-330.
[37] P. Wilson, S. Moore, D. Rubin and P. Bartels, “Informal Caregivers of the Chronically Ill and Their Social Support: A Pilot Study,” Journal of Gerontological Social Work, Vol. 15, No. 1-2,1990, pp.155-169.
[38] S. Turner and H. Street, “Assessing Carers’ Training Needs: A Pilot Inquiry,” Aging and Mental Health, Vol. 3, No. 2, 1999, pp. 173-178.
[39] J. Hall, “Towards a Psychology of Caring,” British Journal of Clinical Psychology, Vol. 29, No. 2, 1990, pp. 129-144.
http://dx.doi.org/10.1111/j.2044-8260.1990.tb00863.x
[40] WHO, “Global Health Observatory (GHO),” Federal Ministry of Health (FMOH), 2011.
[41] R. A. Krueger, “Focus Groups: A Practical Guide for Applied Research,” 2nd Edition, Sage, Newbury Park, 1994.
[42] S. H. Zarit, “Family Care and Burden at the End of Life,” Canadian Medical Association Journal, Vol. 170, No. 12, 2004, pp. 1811-1812.
[43] K. Chou, H. Chu, C. Tseng and R. Lu, “The Measurement of Caregiver Burden,” Journal of Medical Sciences, Vol. 23, No. 2, 2003, pp. 73-82.
http://jms.ndmctsgh.edu.tw/2302073.pdf
[44] A. Gibbs, “Focus Groups,” Social Research Update Issue 19, Guilford, 1997.
http://sru.soc.surrey.ac.uk/SRU19.html
[45] J. Sim, “Collecting and Analysing Qualitative Data: Issues Raised by the Focus Group,” Journal of Advanced Nursing Vol. 28, No. 2, 1998, pp. 345-352.
10.1046/j.1365-2648.19
[46] R. Hebert, G. Bravo and M. Preville, “Reliability, Validity and Reference Values of the Zarit Burden Interview for Assessing Informal Caregivers of Community Dwelling Older Persons with Dementia,” Canadian Journal on Aging, Vol. 19, No. 4, 2000, pp. 494-507.
http://dx.doi.org/10.1017/S0714980800012484
[47] E. Namey, G. Guest, L. Thairu and L. Johnson, “Data Reduction Techniques for Large Qualitative Data Sets,” In: Handbook for Team-Based Qualitative Research, Rowman Altamira, 2008.
[48] C. Nijber, M. Triemstra, R. Tempelear, R. Sanderman and G. A. Van den Bo, “Determinants of Caregiving Experiences and Mental Health of Partners of Cancer Patient,” Cancer, Vol. 86, No. 4, 1999, pp. 577-588.
[49] R. Schulz and A. Quiltner, “Caregiving for Children and Adult with Chronic Conditions: Introduction to Special Issue,” Health Psychology, Vol. 17, No. 2, 1998, pp. 107-111. http://dx.doi.org/10.1037/h0092707
[50] J. Mignone, C. Pindera, J. Davis, P. Migliardi, C. Harvey, M. Bendig, K. McKay-McNabb and L. Elliot, “Social Supports, Informal Caregiving and HIV/AIDS: A Community-Based Study,” 2011.
http://www.academia.edu/1241091/Social_Supports_Informal_Caregiving_and_HIV_AIDS_A_Community-based_Study
[51] O. A. Akintola, “Gender Analysis of the Burden of Care on Family and Volunteer Caregivers in Uganda and South Africa,” Health Economics and HIV/AIDS Research Division (HEARD), Durban, 2004.
http://www.heard.org.za
[52] United Nations, “We can End Poverty 2015, MDG 1: Eradicate Extreme Poverty & Hunger,” 2012.
http://www.un.org/millenniumgoals//poverty.shtml
[53] “UNAIDS Report on the Global AIDS Epidemic: Executive Summary,” 2008.
[54] S. Reinhard, B. Given, N. Petlick and A. Bemis, “Supporting Family Caregivers in Providing Care,” Patient Safety and Quality: An Evidence-Based Handbook for Nurses, Agency for Healthcare Research and Quality, Rockville, 2008.
http://www.ncbi.nlm.nih.gov/books/NBK2665/
[55] M. Scherbring, “Effect of Caregivers Perception of Preparedness on Burden in an Oncology Population,” Oncology Nursing Forum, Vol. 29, No. 6, 2002, pp. 70-76.
http://dx.doi.org/10.1188/02.ONF.E70-E76
[56] R. Kohli, V. Purohit, L. Karve, V. Bhalerao, S. Karvande, S. SheelaRangan, R. Reddy, R. Paranjape and S. Sahay, “Caring for Caregivers of People Living with HIV in the Family: A Response to the HIV Pandemic from Two Urban Slum Communities in Pune, India,” PLoS ONE, Vol. 7, No. 9, 2012, Article ID: e44989.
http://dx.doi.org/10.1371/journal.pone.0044989
[57] M. Chambers, A. Ryan and S. Connor, “Exploring the Emotional Support Needs and Coping Strategies of Family Carers,” Journal of Psychiatric and Mental Health Nursing, Vol. 8, No. 2, 2001, pp. 99-106.
http://dx.doi.org/10.1046/j.1365-2850.2001.00360.x
[58] L. Rose, “Caring for Caregivers: Perceptions of Social Support,” Journal of psychology Nursing and Mental Health Services, Vol. 35, No. 2, 1997, pp. 17-24.

  
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