TITLE:
The Unmet Needs of African American Women with Breast Cancer
AUTHORS:
Marlene M. von Friederichs-Fitzwater, Reverend Tammie Denyse
KEYWORDS:
breast cancer, African American women, quality of care, quality of life, survivorship
JOURNAL NAME:
Advances in Breast Cancer Research,
Vol.1 No.1,
April
18,
2012
ABSTRACT: Breast cancer is the most common cancer in women and treatment includes various combinations of surgery, chemotherapy, and/or hormone therapy. The multimodal treatment of breast cancer improves survival outcomes, but it also contributes to a prolonged period of medical intervention with associated physical and emotional consequences. However, we know less about the specific clinical experiences of African American (AA) women during treatment for breast cancer and in survivorship. The studies that have addressed the issue of breast cancer in AA women have focused primarily on early detection and epidemiological variables such a screening, mortality and staging at diagnosis. In our study, in-depth semi-structured phone interviews were conducted to explore the clinical experiences, concerns and needs of AA women who had survived breast cancer. The AA women reported that their physicians did not provide adequate disease and treatment information; did not discuss clinical trials with them; and did not offer access to support services.