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Knapp, E.A., Fink, A.K., Goss, C.H., Sewall, A., Ostrenga, J., Dowd, C., Elbert, A., Petren, K.M. and Marshall, B.C. (2016) The Cystic Fibrosis Foundation Patient Registry. Design and Methods of a National Observational Disease Registry. Annals of the American Thoracic Society, 13, 1173-1179.
https://www.ncbi.nlm.nih.gov/pubmed/27078236
https://doi.org/10.1513/AnnalsATS.201511-781OC

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