I like it but I don’t have time to tell patients’ families: Exploring barriers and facilitators of pain and dementia knowledge flow between healthcare providers and family caregivers


Pain in persons with dementia is prevalent, largely undetected, and undertreated within the care setting. Family members require resources to help them assume a more significant role in pain assessment and management. This report outlines a psycho-educational online resource developed to address these needs. The report explores the apparent disconnect between the positive evaluation healthcare providers gave the resource and their infrequent rate of referring family caregivers to the resource. We apply a Sticky Knowledge framework to examine these complex and incongruent findings and conclude that health literacy and knowledge translation strategies need to focus directly on family care- givers as opposed to adhering to a more traditional biomedical model in which healthcare professionals assumed the primary responsibility for gatekeeping and knowledge dissemination.

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Brown, C. and Schmidt, A. (2012) I like it but I don’t have time to tell patients’ families: Exploring barriers and facilitators of pain and dementia knowledge flow between healthcare providers and family caregivers. Advances in Aging Research, 1, 60-71. doi: 10.4236/aar.2012.13008.

Conflicts of Interest

The authors declare no conflicts of interest.


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