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Knowledge, Attitudes and Beliefs about Dementia in an Urban Xhosa-Speaking Community in South Africa

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DOI: 10.4236/aad.2015.42004    3,722 Downloads   4,771 Views   Citations

ABSTRACT

Background: Dementia, a debilitating condition, requires particular attention in Southern Africa where there is a dearth of prevalence data. Population ageing and other risk factors are driving an increasing incidence of dementia. However, limited knowledge and understanding may impact the attitudes and practices towards persons with dementia. Aim: To investigate the relationship between the knowledge of dementia, its effect on the attitudes and practices toward people with dementia in an urban community setting. To determine the perceived availability of services for those with dementia, the awareness of elder abuse and care-giver burden. Methods: A descriptive, cross-sectional study was performed in Khayelitsha. An interviewer administered questionnaire was used with assistance from isiXhosa speaking translators. A sample of 100 individuals was surveyed door-to-door from both the informal and formal housing settlements, using cluster random sampling methods. Results: There was deficient knowledge about dementia, with an average accuracy of 53.44% on the knowledge test. Only 10% reported knowing what dementia was. Participants had generally tolerant views about people with dementia. No significant relationship was found between knowledge and attitudes about dementia. There was a significant difference between people who would share their house with a family member with dementia or send them to nursing homes (p = 0.03). 64% of participants knew what elder abuse was. 19% knew of an elder who had been abused; amongst the most common forms reported were being locked alone in their house and being deprived of food. Conclusions: This study showed that knowledge about dementia was limited with no relationship to attitudes of high tolerance towards people with dementia. Elder abuse was well recognized, but poorly reported. Appropriate health promotion strategies and education should be conducted and further research should be done into dementia in South Africa.

Conflicts of Interest

The authors declare no conflicts of interest.

Cite this paper

Khonje, V. , Milligan, C. , Yako, Y. , Mabelane, M. , Borochowitz, K. and de Jager, C. (2015) Knowledge, Attitudes and Beliefs about Dementia in an Urban Xhosa-Speaking Community in South Africa. Advances in Alzheimer's Disease, 4, 21-36. doi: 10.4236/aad.2015.42004.

References

[1] WHO (2012) Dementia: A Public Health Priority. World Health Organization, Geneva.
http://www.who.int/mental_health/publications/dementia_report_2012/en/
[2] Ogunniyi, A., Baiyewu, O., Gureje, O., Hall, K.S., Unverzagt, F., Siu, S.H., et al. (2000) Epidemiology of Dementia in Nigeria: Results from the Indianapolis-Ibadan Study. European Journal of Neurology, 7, 485-490.
http://dx.doi.org/10.1046/j.1468-1331.2000.00124.x
[3] Purandare, N., Luthra, V., Swarbrick, C. and Burns, A. (2007) Knowledge of Dementia among South Asian (Indian) Older People in Manchester, UK. International Journal of Geriatric Psychiatry, 22, 777-781.
http://dx.doi.org/10.1002/gps.1740
[4] Garvey, G., Simmonds, D., Clements, V., O’Rourke, P., Sullivan, K., Gorman, D., et al. (2011) Making Sense of Dementia: Understanding amongst Indigenous Australians. International Journal of Geriatric Psychiatry, 26, 649-656.
http://dx.doi.org/10.1002/gps.2578
[5] Connell, C.M., Scott Roberts, J. and McLaughlin, S.J. (2007) Public Opinion about Alzheimer Disease among Blacks, Hispanics, and Whites: Results from a National Survey. Alzheimer Disease & Associated Disorders, 21, 232-240.
http://dx.doi.org/10.1097/WAD.0b013e3181461740
[6] Arai, Y., Arai, A. and Zarit, S.H. (2008) What Do We Know about Dementia?: A Survey on Knowledge about Dementia in the general Public of Japan. International Journal of Geriatric Psychiatry, 23, 433-438.
http://dx.doi.org/10.1002/gps.1977
[7] La Fontaine, J., Ahuja, J., Bradbury, N.M., Phillips, S. and Oyebode, J.R. (2007) Understanding Dementia amongst People in Minority Ethnic and Cultural Groups. Journal of Advanced Nursing, 60, 605-614.
http://dx.doi.org/10.1111/j.1365-2648.2007.04444.x
[8] Adamson, J. (2001) Awareness and Understanding of Dementia in African/Caribbean and South Asian Families. Health & Social Care in the Community, 9, 391-396.
http://dx.doi.org/10.1046/j.0966-0410.2001.00321.x
[9] Putman, S. (2008) Mental Illness: Diagnostic Title or Derogatory Term? (Attitudes towards Mental Illness) Developing a Learning Resource for Use within a Clinical Call Centre. A Systematic Literature Review on Attitudes towards Mental Illness. Journal of Psychiatric and Mental Health Nursing, 15, 684-693.
http://dx.doi.org/10.1111/j.1365-2850.2008.01288.x
[10] Audu, I.A., Idris, S.H., Olisah, V.O. and Sheikh, T.L. (2013) Stigmatization of People with Mental Illness among Inhabitants of a Rural Community in Northern Nigeria. International Journal of Socical Psychiatry, 59, 55-60.
http://dx.doi.org/10.1177/0020764011423180
[11] Sahin, H.A., Gurvit, I.H., Emre, M., Hanagasi, H.A., Bilgic, B. and Harmanci, H. (2006) The Attitude of Elderly Lay People towards the Symptoms of Dementia. International Psychogeriatrics, 18, 251-258.
http://dx.doi.org/10.1017/S1041610205002784
[12] Corner, L. and Bond, J. (2004) Being at Risk of Dementia: Fears and Anxieties of Older Adults. Journal of Aging Studies, 18, 143-155.
http://dx.doi.org/10.1016/j.jaging.2004.01.007
[13] Lawrence, V., Samsi, K., Banerjee, S., Morgan, C. and Murray, J. (2011) Threat to Valued Elements of Life: The Experience of Dementia across Three Ethnic Groups. The Gerontologist, 51, 39-50.
http://dx.doi.org/10.1093/geront/gnq073
[14] Dilworth-Anderson, P. and Gibson, B.E. (2002) The Cultural Influence of Values, Norms, Meanings, and Perceptions in Understanding Dementia in Ethnic Minorities. Alzheimer Disease & Associated Disorders, 16, S56-S63.
http://dx.doi.org/10.1097/00002093-200200002-00005
[15] Fitzpatrick, M.J. and Hamill, S.B. (2010) Elder Abuse: Factors Related to Perceptions of Severity and Likelihood of Reporting. Journal of Elder Abuse & Neglect, 23, 1-16.
http://dx.doi.org/10.1080/08946566.2011.534704
[16] Ferreira, M. (2005) Elder Abuse in Africa: What Policy and Legal Provisions Are There to Address the Violence? Journal of Elder Abuse & Neglect, 16, 17-32.
http://dx.doi.org/10.1300/J084v16n02_02
[17] Selwood, A., Cooper, C. and Livingston, G. (2007) What Is Elder Abuse—Who Decides? International Journal of Geriatric Psychiatry, 22, 1009-1012.
http://dx.doi.org/10.1002/gps.1781
[18] Wigglesworth, A., Mosqueda, L., Mulnard, R., Liao, S., Gibbs, L. and Fitzgerald, W. (2010) Screening for Abuse and Neglect of People with Dementia. Journal of the American Geriatrics Society, 58, 493-500.
http://dx.doi.org/10.1111/j.1532-5415.2010.02737.x
[19] Yan, E. and Kwok, T. (2011) Abuse of Older Chinese with Dementia by Family Caregivers: An Inquiry into the Role of Caregiver Burden. International Journal of Geriatric Psychiatry, 26, 527-535.
http://dx.doi.org/10.1002/gps.2561
[20] Remember Their Names, Victims of Witch-Hunts in South Africa 2010-2012 [Internet]. South African Pagan Rights Alliance.
http://www.paganrightsalliance.org/remember-their-names/
[21] Manthorpe, J., Samsi, K. and Rapaport, J. (2012) Responding to the Financial Abuse of People with Dementia: A Qualitative Study of Safeguarding Experiences in England. International Psychogeriatrics, 24, 1454-1464.
http://dx.doi.org/10.1017/S1041610212000348
[22] Schulz, R. and Martire, L.M. (2004) Family Caregiving of Persons with Dementia: Prevalence, Health Effects, and Support Strategies. American Journal of Geriatric Psychiatry, 12, 240-249.
http://dx.doi.org/10.1176/appi.ajgp.12.3.240
[23] Prince, M. (2004) Care Arrangements for People with Dementia in Developing Countries. International Journal of Geriatric Psychiatry, 19, 170-177.
http://dx.doi.org/10.1002/gps.1046
[24] Cohen, C.A., Colantonio, A. and Vernich, L. (2002) Positive Aspects of Caregiving: Rounding Out the Care-Giver Experience. International Journal of Geriatric Psychiatry, 17, 184-188.
http://dx.doi.org/10.1002/gps.561
[25] Cassie, K. and Sanders, S. (2008) Familial Caregivers of Older Adults. Handb. Psychosoc. Interv. Older Adults Evidence-Based Approaches. Haworth Press, 293-320.
[26] Joubert, G. and Ehrlich, R. (2007) Epidimiology. A Research Manual for South Africa. 2nd Edition, Oxford University Press, South Africa.
[27] Ayalon, L. and Arean, P.A. (2004) Knowledge of Alzheimer’s Disease in Four Ethnic Groups of Older Adults. International Journal of Geriatric Psychiatry, 19, 51-57.
http://dx.doi.org/10.1002/gps.1037
[28] Carpenter, B.D., Balsis, S., Otilingam, P.G., Hanson, P.K. and Gatz, M. (2009) The Alzheimer’s Disease Knowledge Scale: Development and Psychometric Properties. The Gerontologist, 49, 236-247.
http://dx.doi.org/10.1093/geront/gnp023
[29] Crabb, J., Stewart, R.C., Kokota, D., Masson, N., Chabunya, S. and Krishnadas, R. (2012) Attitudes towards Mental Illness in Malawi: A Cross-Sectional Survey. BMC Public Health, 12, 541.
http://dx.doi.org/10.1186/1471-2458-12-541
[30] Knopman, D.S., DeKosky, S.T., Cummings, J.L., Chui, H., Corey-Bloom, J., Relkin, N., et al. (2001) Practice Parameter: Diagnosis of Dementia (an Evidence-Based Review) Report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology, 56, 1143-1153.
http://dx.doi.org/10.1212/WNL.56.9.1143
[31] Prince, M.J. (2009) The 10/66 Dementia Research Group—10 Years on. Indian Journal of Psychiatry, 51, S8-S15.
[32] Alzheimer’s Disease International (2013) World Alzheimer Report 2013. Journey of Caring. An Analysis of Long-Term Care for Dementia. Chapters 1 and 3, pp. 12-17, 25-29.
http://www.alz.co.uk/research/WorldAlzheimerRepor2013.pdf
[33] Vitaliano, P.P., Zhang, J. and Scanlan, J.M. (2003) Is Caregiving Hazardous to One’s Physical Health? A Meta-Analysis. Psychological Bulletin, 129, 946-972.
http://dx.doi.org/10.1037/0033-2909.129.6.946

  
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