[1]
|
Riemsma, R., Kirwen, J., Taal, E. and Rasker, H. (2003) Patient education for adults with Rheumatoid Arthritis. Cochrane Database of Systematic Reviews, Ariticle ID: CD003688.
|
[2]
|
Lapsley, H., March, L.M., Tribe, K.L., Cross, M.J., Courtney, B.G. and Brooks, P.M. (2002) Living with Rheumatoid Arthritis: Expenditures, health status and scoial impact on patients. Annals of Rheumatic Disease, 61, 818- 821. doi:10.1136/ard.61.9.818
|
[3]
|
Arthritis Research C (2002) Arthritis—The big picture. Arthritis Research Campaign Chesterfield. Arthritis Research UK.
http://www.arthritisresearchuk.org/policy-and-public-affairs/reports-and-resources/reports.aspx
|
[4]
|
Hardware, B., Lacey, E. and Shewan, J. (2004) Towards the development of a tool to assess educational needs in patiens with arthritis. Clinincal Effectiveness in Nursing, 8, 111-117.
|
[5]
|
Hill, J. (2003) An overview of education for patients with rheumatic diseases. Nursing Times, 99, 26-27.
|
[6]
|
Lorish, C. and Boutaugh, M. (1997) Patient education in rheumatology. Epidemiology and Health Services Research, 9, 106-111.
|
[7]
|
Mazzuca, S., Brandt, K., Katz, B., Chambers, M., Byrd, D. and Hanna, M. (1997) Effects of self care education on the health status of inner-city patients with osteoarthritis of the knee. Arthritis and Rheumatism, 40, 1466-1474.
doi:10.1002/art.1780400815
|
[8]
|
Edworthy, S. and Devins, G. (1996) Improving medication adherence through patient education: Distinguishing between appropriate and inappropriate utilisation. Journal of Rheumatology, 26, 1793-1801.
|
[9]
|
Hill, J., Bird, H. and Johnson, S. (2001) Effect of patient education on adherence with drug treatment for Rheuma- Toid Arthritis; a randomised controlled trial. Annals of Rheumatic Disease, 60, 869-875.
|
[10]
|
Li, L.C. (2007) If knowledge is power, why don’t Rheu- Matoid Arthritis education programs show better outcomes? The Journal of Rheumatology, 34, 1645-1646.
|
[11]
|
Brooks, P., Hochberg, M. and for ILAR and OMERACT (2001) Outcome measures and classification criteria for the rheumatic diseases. A compilation of data from OMERACT (Outcome Measures for Arthritis Clinical Trials), ILAR (International League of Associations for Rheumatology), regional leagues and other groups. Rheumatology, 40, 896-906. doi:10.1093/rheumatology/40.8.896
|
[12]
|
Kirwen, J. (2007) Patient education—From information to empowerment. Annals of Rheumatic Disease, 66, 10.
|
[13]
|
Combe, B., Landewe, R., Lukas, C., Bolosiu, H.D., Breedveld, F., Dougados, M., Emery, P., Ferraccioli, G., Hazes, J.M.W., Klareskog, L., et al. (2007) EULAR recommenddations for the management of early arthritis: Report of a task force of the European Standing Committee for International Clinical Studies Including Therapeutics (ESCISIT). Annals of the Rheumatic Diseases, 66, 34-45.
doi:10.1136/ard.2005.044354
|
[14]
|
Rasch, G. (1960) Probabilistic models for some intelligence and attainments tests. University of Chicago, Chicago.
|
[15]
|
Hill, J., Tennant, A. and Adebajo, A. (2004) Further development of an educational needs tool (ENAT) for patients with rheumatoid arthritis. Arthritis and Rheumatism, 50, 616.
|
[16]
|
Ndosi, M., Tennant, A., Bergsten, U., Kukkurainen, M., Machado, P., de la Torre-Aboki, J., Vliet Vlieland, T., Zangi, H. and Hill, J. (2011) Cross-cultural validation of the educational needs assessment tool in RA in 7 European countries. BMC Musculoskeletal Disorders, 12, 110. doi:10.1186/1471-2474-12-110
|
[17]
|
Hale, C., Hill, J. and Tennant, A. (2006) The use of RASch analysis in the construct and cross-cultural validation of questionnaire data: An example from the educational needs assessment tool. Annals of Rheumatic Disease, 65, 665.
|
[18]
|
Meesters, J.L., Vliet Vlieland, T.M., Hill, J. and Ndosi, M. (2009) Measuring educational needs among patients with rheumatoid arthritis using the Dutch version of the Educational Needs Assessment Tool (DENAT). Clinical Rheumatology, 28, 1357-1357.
doi:10.1007/s10067-009-1271-3
|
[19]
|
Grønning, K., Skomsvoll, J.F., Rannestad, T. and Steinsbekk, A. (2012) The effect of an educational programme consisting of group and individual arthritis education for patients with polyarthritis—A randomised controlled trial. Patient Education and Counseling, 88, 113-120.
doi:10.1016/j.pec.2011.12.011
|
[20]
|
Lorig, K., Chastain, R.L., Ung, E., Shoor, S. and Holman, H.R. (1989) Development and evaluation of a scale to measure perceived self-efficacy in people with arthritis. Arthritis & Rheumatism, 32, 37-44.
doi:10.1002/anr.1780320107
|
[21]
|
Tugwell, P. and Boers, M. (1993) OMERACT conference on outcome measures in RA clinical trials: Introduction. Journal of Rheumatology, 20, 528-530.
|
[22]
|
Tugwell, P., Boers, M., Baker, P. and Snider, J. (1994) Endpoints in rheumatoid arthritis. Journal of Rheumatology, 21, 2-8.
|
[23]
|
Guillemin, F., Coste, J., Pouchot, J., Ghézail, M., Bregeon, C. and Sany, J. (1997) The AIMS2-SF. A short form of the arthritis impact measurement scales 2. Arthritis & Rheumatism, 40, 1267-1274.
|
[24]
|
Hennell, S.L., Brownsell, C. and Dawson, J.K. (2004) Development, validation and use of a patient knowledge questionnaire (PKQ) for patients with early rheumatoid arthritis. Rheumatology, 43, 467-471.
doi:10.1093/rheumatology/keh069
|
[25]
|
Bandura, A. (1977) Self-efficacy; towards a unifying theory of behavioural change. Psychological Review, 84, 191- 215. doi:10.1037/0033-295X.84.2.191
|
[26]
|
Somers, T.J., Shelby, R.A., Keefe, F.J., Godiwala, N., Lumley, M.A., Mosley-Williams, A., Rice, J.R. and Caldwell, D. (2010) Disease severity and domain-specific arthritis self-efficacy: Relationships to pain and functioning in patients with rheumatoid arthritis. Arthritis Care & Research, 62, 848-856. doi:10.1002/acr.20127
|
[27]
|
Primdahl, J., Wagner, L. and Hørslev-Petersen, K. (2010) Self-efficacy in rheumatoid arthritis: translation and test of validity, reliability and sensitivity of the Danish version of the Rheumatoid Arthritis Self-Efficacy questionnaire (RASE). Musculoskeletal Care, 8, 123-135.
doi:10.1002/msc.172
|
[28]
|
Marks, R. (2001) Efficacy theory and its utility in arthritis rehabilitation: Review and recommendations. Disability and Rehabilitation, 23, 271-280.
doi:10.1080/09638280010004162
|
[29]
|
Lorig, K., Ritter, P., Laurent, D. and Hobbs, M. (2001) Effect of a self management programme on patients with chronic disease. Effective Clinical Practice, 4, 256-62.
|
[30]
|
Brekke, M., Hjortdahl, P. and Kvien, T.K. (2003) Changes in self-efficacy and health status over 5 years: A longitudinal observational study of 306 patients with rheumatoid arthritis. Arthritis Care & Research, 49, 342-348.
doi:10.1002/art.11112
|
[31]
|
Meenan, R.F., Mason, J.H., Anderson, J.J., Guccione, A.A. and Kazis, L.E. (1992) AIMS2. The content and properties of a revised and expanded arthritis impact measurement scales health status questionnaire. Arthritis & Rheumatism, 35, 1-10. doi:10.1002/art.1780350102
|
[32]
|
Carr, A. (2003) Adult measures of quality of life: The arthritis impact measurement scales (AIMS/AIMS2), disease repercussion profile (DRP), EuroQoL, nottingham health profile (NHP), patient generated index (PGI), quality of well-being scale (QWB), RAQoL, short form-36 (SF-36), sickness impact profile (SIP), SIP-RA, and world health organization’s quality of life instruments (WHOQoL, WHOQoL-100, WHOQoL-Bref). Arthritis Care & Research, 49, S113-S133.
doi:10.1002/art.11414
|
[33]
|
Barlow, J.H., Williams, B. and Wright, C. (1997) The reliability and validity of the arthritis self-efficacy scale in a UK context. Psychology, Health and Medicine, 2, 3-17.
doi:10.1080/13548509708400556
|
[34]
|
Richie, J. and Spencer, L. (1994) Qualitative data analysis for applied policy research. In: Bryman and Burgess, Eds., Analyzing Qualitative Data, Routledge, London, 173-194. doi:10.4324/9780203413081_chapter_9
|