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A Support Programme for Caregivers of Children with Heart Disease in Rural Namibia

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DOI: 10.4236/jss.2014.211014    2,442 Downloads   2,650 Views  

ABSTRACT

The majority of children suffering from heart disease in Namibia receive treatment as outpatients, with their caregivers taking responsibility for their continuing care. To provide the care required by these children, the caregiver has to remain vigilant. Many of these children live in rural areas and their caregivers may have only a limited educational background, as well as limited financial resources, as they depend on subsistence agriculture for a living. The development of the support programme discussed in this article originated from the results of a qualitative, exploratory, phenomenological study that addressed the issue of how these caregivers managed this responsibility. The findings of this study revealed that the caregivers generally had poor coping experiences. Subsequently, these findings formed the basis for the proposal about a support programme for the rural caregivers of children with heart disease in Namibia. As part of the study, interventions for home-based health care were developed, implemented and evaluated in order to facilitate the caregiver’s coping with the demands of home care. The findings of an outcomes evaluation indicated that the caregivers’ knowledge of the child’s condition, as well as the skills for providing care at home and the information about community-based resources that could provide them with support to cope, increased. If the programme were to be extended to other families in similar contexts, the programme interventions could make a difference in terms of their coping with the demands of care. This paper describes the implementation process involved in a home-based health care programme intervention of the study, and the subsequent outcomes of the programme evaluation.

Cite this paper

Amakali, K. and Small, L. (2014) A Support Programme for Caregivers of Children with Heart Disease in Rural Namibia. Open Journal of Social Sciences, 2, 97-104. doi: 10.4236/jss.2014.211014.

References

[1] World Health Organization (WHO) (2009) Maternal and Child Health in Namibia. World Health Organization, Windhoek, Namibia.
[2] Coovadia, H.M. and Wittenberg, D.F. (2007) Paediatric and Child Health: A Manual for Health Professionals in Developing Countries. 5th Edition, Oxford University Press, Cape Town.
[3] Beck, C. and Wiencek-Kurek, J. (2007) Healthy Neighbourhood Heart Initiative: Bringing Community Health Theory to Civic Community. Cuyahonga Community, Cuyahonga. www.nc.maricopa.edu/other/engagement/Journal/Issue 3/Beck.pdf
[4] Amakali, K. (2013) Investigating the Need for a Home-Based Health Care Programme in Support of Parents/Care- givers of Children Diagnosed with Heart Disease in the Rural Areas of Namibia. Ph.D. Dissertation, University of Na- mibia, Namibia.
[5] Polit, D.F. and Beck, C.T. (2012) Nursing Research Generating and Assessing Evidence for Nursing Practice. 9th Edition, Lippincott Williams & Wilkins, Philadelphia.
[6] Sandelowski, M. (2000) Focus on Research Method. Whatever Happened to Qualitative Research? Research in Nursing & Health, 23, 334-340. http://dx.doi.org/10.1002/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G
[7] Glanz, K., Rimer, B.K. and Viswanath, K. (2008) Health Behaviours and Health Education: Theory, Research and Practice. 4th Edition, Jossey-Bass, San Francisco.
[8] Dickoff, et al.’s (1968).
[9] Pretorius, S., Sliwa, K., Ruf, V., Walker, K. and Stewart, S. (2012) Feeding the Emergence of Advanced Heart Diseases in Soweto: A Nutritional Survey of Black African Patients with Heart Failure. Cardiovascular Journal of Africa (Official Journal for PASCAR), 23, 245-250. http://dx.doi.org/10.5830/CVJA-2011-021
[10] Wahlin (2009).
[11] Boyse, K., Boujaode, L. and Laudray, J. (2011) Children with Chronic Conditions. University of Michigan, USA. http://www.med.unimich.edu/yourchild/topic/chronic.htm
[12] Parahoo, K. (2006) Nursing Research: Principle, Process and Issues. 6th Edition, Palgrave MacMillan, New York.
[13] Knowles, M. (2012) Informal Adult Education, Self-Direction and Andragogy. http://www.infed.org/thinkers/et-knwl.htm
[14] Pretorius, L. (2008) An Educational Programme to Facilitate Critical Thinking of Student Nurses in Namibia. Unpublished Ph.D. Thesis, University of Namibia, Windhoek.
[15] Meyer, M. (2004) Effective Facilitation: Practical Guidelines for Manager, Facilitators, Consultant and Trainers. New Africa Book, Claremont.
[16] Nicolini, F. and Gherli, T. (2009) Alternative to Transplantation in the Surgical Therapy for Heart Failure. European Journal of Cardio-Thoracic Surgery, 35, 214-228. http://dx.doi.org/10.1016/j.ejcts.2008.11.003
[17] Gibson, T. (2007) Interventional Cardiology for Coronary Heart Disease. In: Oxford Handbook of Cardiac Nursing, Oxford University Press, Oxford.
[18] World Health Organization (WHO) (2002) Community Home-Based Care in Resource-Limited Settings: A Framework for Action. World Health Organization, Geneva.
[19] Chair, S.Y. and Pang, A.M.H. (2008) Patient Education before Undergoing Percutaneous Coronary Intervention. British Cardiac Nursing, 3, 32-36. http://dx.doi.org/10.12968/bjca.2008.3.1.27998
[20] Raina, P., O’Donnel, M., Rosenbaum, P., Brehaut, J., Walter, S.D., Russell, D., Swinton, M. and Wood, E. (2005) The Health and Well-Being of Caregivers of Children with Cerebral Palsy. Paediatrics, 115, e626-e636. http://dx.doi.org/10.1542/peds.2004-1689
[21] Mitchell, G.R. (2011) Empowering Caregivers. www.caregivers.com
[22] Cowley, S. (2004) Getting the Burger to Think. MPG Books, London.
[23] Maree, K. (2007) First Steps in Research. Van Schaik, Pretoria.
[24] Bugge, K.E., Helseth, S. and Darbyshire, P. (2009) Parents’ Experiences of a Family Support Programme When a Parent Has Incurable Cancer. Journal of Clinical Nursing, 18, 3480-3488. http://dx.doi.org/10.1111/j.1365-2702.2009.02871.x
[25] Taylor-Powell, E., Steele, S. and Douglah, M. (1996) Plan-ning a Programme Evaluation. University of Wisconsin. http://learningstore.uwex.edu/assets/pdf/g3658-pdf
[26] Tailor-Powell, Steele and Douglah.
[27] Creswell, J.W. (2008) Educational Research: Planning, Conducting and Evaluating Qualitative and Quantitative Research. 4th Edition, Pearson Education, New Jersey.
[28] Riegel, B., Vaughan Dickson, V., Goldberg, L.R. and Deatrick, J.A. (2007) Factors Associated with the Development of Expertise in Heart Failure Self-Care. Nursing Research, 56, 350-360.
[29] Thastrum, J.M., Munch-Hansen, A., Wiell, A. and Romer, G. (2006) Evaluation of a Short-Term Preventive Counselling Project for Families with a Patient with Cancer. Clinical Child Psychology and Psychiatry, 11, 529-542. http://dx.doi.org/10.1177/1359104506067875
[30] ?gren, S. (2010) Supportive Care for Patients with Heart Failure and Their Partners: A Descriptive and Interventional Study. Ph.D. Thesis, Division of Nursing Science, Department of Medical & Health Sciences, Faculty of Health Sciences, Linkoping University, Sweden.
[31] George, J.B. (2008) Nursing Theories: The Base for Professional Nursing Practice. 4th Edition, Appleton & Lange, Connecti-cut.
[32] Aljandro, P., Huberto, J. and Augustin, G.D. (2008) Reasoning and Knowledge by Cognitive Map: Pursuing a Holist Approach. Expert System Applications, 359, 2-18.
[33] Sniehotta, T.F., Scholz, U. and Schiwarzer, R. (2005) Bridging in the Intention-Behaviour Gap: Planning, Self-Effica- cy and Action Control in the Adaptation and Mainte-nance of Physical Exercise. Psychology of Health, 20, 143-160. http://dx.doi.org/10.1080/08870440512331317670
[34] Stajduhar, K., Leigh Martin, W., Barwich, D. and Fyles, G. (2008) Factors Influencing Family Caregivers’ Ability to Cope with Providing End-of-Life Cancer Care at Home. Cancer Nursing, 31, 77-85. http://dx.doi.org/10.1097/01.NCC.0000305686.36637.b5
[35] Beck and Wiencek-Kurek (2007).

  
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