Health> Vol.5 No.11B, November 2013
Views: 303    Downloads: 301

Health related quality of life in paediatric chronic health conditions: A comparative study among children and adolescents in Jordan

ABSTRACT

The major aim of the current study is to understand health related quality of life (HRQoL) domains from children’s own perspective. Specifically, we aim to determine the HRQoL in childhood chronic illnesses and to compare scores with healthy children. A cross-sectional study design with a total of 149 chronically ill children and 162 healthy participants was consecutively enrolled in this study. The Arabic-PedsQLTM-Version 0.4 Scales were used to assess HRQoL in both groups. Results showed that the chronically ill children reported more problems with physical, emotional and school functioning (all significant at p < 0.001) when compared to their healthy peers. This significant difference extended to all HRQoL domains except social functioning. Children with chronic renal failure, diabetes mellitus and sbina bifida showed the lowest HRQoL scores among the group in all domains. The impact of chronic diseases on children’s HRQoL is significantly evident in Jordan. Therefore, a holistic and individual approach to the health care and education in those children requests reintegration programmes that are best facilitated by coordinated efforts between child's home, school and hospital.

KEYWORDS


Cite this paper

Arabiat, D. and Al Jabery, M. (2013) Health related quality of life in paediatric chronic health conditions: A comparative study among children and adolescents in Jordan. Health, 5, 19-24. doi: 10.4236/health.2013.511A2004.

References

[1] Geist, R., Grdisa, V. and Otley, A. (2003) Psychosocial issues in the child with chronic conditions. Best Practice & Research Clinical Gastroenterology, 17, 141-152.
http://dx.doi.org/10.1016/S1521-6918(02)00142-7
[2] Ismail, A., Campbell, M.J., Ibrahim, H.M. and Jones, G.L. (2006) Health related quality of life in Malaysian children with thalassaemia. Health and Quality of Life Outcomes, 4, 1-8.
[3] Eiser, C. and Morse, R. (2001) The measurement of quality of life in children: Past and future perspectives. Journal of Developmental & Behavioral Pediatrics, 22, 248-256. http://dx.doi.org/10.1097/00004703-200108000-00007
[4] Varni, J.W., Limbers, C. and Burwinkle, T.M. (2007) Literature review: Health-related quality of life measurement in pediatric oncology: Hearing the voices of the children. Journal of Pediatric Psychology, 32, 1151-1163.
http://dx.doi.org/10.1093/jpepsy/jsm008
[5] Varni, J.W., Burwinkle, T.M. and Lane, M.M. (2005) Health-related quality of life measurement in pediatric clinical practice: An appraisal and precept for future research and application. Health and Quality of Life Outcomes, 3, 1-9.
[6] Clarke, S. and Eiser, C. (2004) The measurement of health-related quality of life (QOL) in paediatric trials: A systematic review. Health and Quality of Life Outcomes, 2, 66. http://dx.doi.org/10.1186/1477-7525-2-66
[7] Arabiat, D. (2013) Psychological wellbeing of children with cancer in Jordan. LAP LAMBERT Academic Publishing, Germany.
[8] Black, M.M., Eiser, C. and Krishnakumar, A. (2000) International research and practice in pediatric psychology: Challenges and new directions. Journal of Pediatric Psychology, 25, 363-366.
http://dx.doi.org/10.1093/jpepsy/25.6.363
[9] Eiser, C., Eiser, J.R. and Stride, C.B. (2005) Quality of life in children newly diagnosed with cancer and their mothers. Health and Quality of Life Outcomes, 3, 29.
http://dx.doi.org/10.1186/1477-7525-3-29
[10] Varni,. J.W., Limbers, C.A. and Burwinkle, T.M. (2007) Impaired health-related quality of life in children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQLTM 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5, 1-15
http://dx.doi.org/10.1186/1477-7525-5-1
[11] Varni, J., Seid, M. and Kurtin, P. (2001) PedsQL_4.0: Reliability and validity of the Pediatric Quality of Life Inventory_version 4.0 generic core scales in healthy and patient populations. Medical Care, 39, 800-812.
http://dx.doi.org/10.1097/00005650-200108000-00006
[12] Arabiat, D., Elliott, B., Draper, P. and Al Jabery, M. (2011) Cross-cultural Validation of the Pediatric Quality of Life InventoryTM 4.0 (PedsQLTM) generic core scale into Arabic language. Scandinavian Journal of Caring Science, 25, 828-833.
http://dx.doi.org/10.1111/j.1471-6712.2011.00889.x
[13] Georgiadia, M. and Kourkoutasb, E.E. (2010) Supporting pupils with cancer on their return to school: A case study report of a reintegration program. Procedia Social and Behavioral Sciences, 5, 1278-1282.
http://dx.doi.org/10.1016/j.sbspro.2010.07.275
[14] Upton, P. and Eiser, C. (2006) School experiences after treatment for a brain tumour. Child: Care, Health and Development, 32, 9-17.
http://dx.doi.org/10.1111/j.1365-2214.2006.00569.x
[15] Harris, M.S. (2009) School reintegration for children and adolescents with cancer: The role of school psychologists. Psychology in the Schools, 46, 579-592.
http://dx.doi.org/10.1002/pits.20399

comments powered by Disqus

Copyright © 2014 by authors and Scientific Research Publishing Inc.

Creative Commons License

This work and the related PDF file are licensed under a Creative Commons Attribution 4.0 International License.