“I screamed for help”: A single case study of one sister’s experiences with formal psychiatric care when her brother became mentally ill

Abstract

Studies have shown that the quality of the relationship between siblings has great significance for the mentally ill sibling’s overall quality of life. Sibling relationships may be particularly important because few adults with severe mental illness have children. As parents grow older, adult children are expected to support their sibling with mental illness when their parents are no longer able to do so. The sibling relationship has the potential to be one of the most significant relationships for adults with schizophrenia. The aim of this paper is to present a case study of a sister’s experiences and needs in her contact with psychiatric care. This single case study was designed and the informant was recruited because of her value in maximizing what we can learn about being a sibling to a person with mental illness. Data were collected through four indepth, semistructured, repeated interviews during a two-year period, and were interpreted and analyzed through content analysis. Three major topics were discussed: 1) Anna’s brother’s time with formal psychiatric care; 2) Anna’s feelings and emotions; and 3) Anna’s view of her contact with psychiatric care. The findings indicated a sibling’s need for attention, support, and understanding from the formal caregivers. Participation in our study was one of the first opportunities she had to talk about her relationship with formal psychiatric care. An open dialogue may help siblings to manage their situations.

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Sjöblom, L. , Hellzèn, O. and Lilja, L. (2013) “I screamed for help”: A single case study of one sister’s experiences with formal psychiatric care when her brother became mentally ill. Health, 5, 417-425. doi: 10.4236/health.2013.53056.

Conflicts of Interest

The authors declare no conflicts of interest.

References

[1] Anderson, C., Reiss, D. and Hogarty, G. (1986) Schizo phrenia and the family. Guilford, New York.
[2] Lefley, H. (1996) Family caregiving in mental illness. SAGE Publications, Thousand Oaks.
[3] Ferriter, M. and Huband, N. (2003) Ex-periences of parents with a son or daughter suffering from schizophrenia. Journal of Mental Health Nursing, 10, 552-560. doi:10.1046/j.1365-2850.2003.00624.x
[4] Saunders, J.C. and Byrne, M.M. (2002) A thematic analy sis of families living with schizophrenia. Archives of Psychiatric Nursing, 16, 217-223. doi:10.1053/apnu.2002.36234
[5] Sveinbjarnardottir, E. and Dierckx de Casterle, B. (1997) Mental illness in the family: An emotional experience. Issues in Mental Health Nursing, 18, 45-56. doi:10.3109/01612849709006539
[6] Tuck, I., du Mont, P., Evans, G. and Shupe, J. (1997) The experience of caring for an adult child with schizophrenia. Archives of Psychiatric Nursing, 11, 118-125. doi:10.1016/S0883-9417(97)80034-9
[7] George, R.D. and Howell, C.C. (1996) Clients with schizophrenia and their care-givers’ perceptions of frequent psychiatric rehospitalizations. Issues in Mental Health Nursing, 17, 573-583. doi:10.3109/01612849609006534
[8] Sj?blom, L.M., Peilert, A. and Asplund, K. (2005) Nurses’ view of family in psychiatric care. Journal of Clinical Nursing, 14, 562-569. doi:10.1111/j.1365-2702.2004.01087.x
[9] Sj?blom, L.M., Wiberg, L., Pejlert, A. and Asplund, K. (2008) How family members of a person suffering from mental illness experience psychiatric care. International Journal of Psychiatric Nursing Research, 13, 1-13.
[10] Sj?blom, L.M., Hellzèn, O. and Lilja, L. (Submitted) Patients’ view of their families’ participation in psychiatric care—A qualitative interview study.
[11] Greenberg, J.S., Kim, H.W. and Greenley, J.R. (1997) Factors associated with subjective burden in siblings of adults with severe mental illness. American Journal of Orthopsychiatry, 67, 231-241. doi:10.1037/h0080226
[12] Cicirelli, V.G. (1989) Feelings of attachment to siblings and well-being in later life. Psychology and Aging, 4, 211-216. doi:10.1037/0882-7974.4.2.211
[13] Campbell, L., Connidis, I. and Davies, L. (1999) Sibling ties in later life: A social network analysis. Journal of Family Issues, 29, 114-118. doi:10.1177/019251399020001006
[14] Robinson, E. (1996) Causal attributions about mental illness: Relationship to family. American Journal of Ortho psychiatry, 66, 282-294. doi:10.1037/h0080179
[15] Hatfield, A. and Lefley, H.P. (2005) Future involvement of siblings in the lives of persons with mental illness. Community Mental Health Journal, 41, 327-338. doi:10.1007/s10597-005-5005-y
[16] Smith, M.J. and Green-berg, J.S. (2007) The effect of the quality of sibling relationships on the life situation of adults with schizophrenia. Psychiatric Services, 58, 1222 1224. doi:10.1176/appi.ps.58.9.1222
[17] Lincoln, Y. and Gruba, E.G. (1985) Naturalistic inquiry. Sage Publications, Newbury Park.
[18] Stake, R.E. (1995) The art of case study research. Sage Publications, Thousand Oaks.
[19] Hamel, J., Dufour, S. and Fortin, D. (1993) Case study methods. Sage Publications, Newbury Park.
[20] Beeman, S. (1995) Maximizing credibility and account ability in qualitative data collection and data analysis: A social work research case example. Journal of Sociology and Social Welfare, 22, 99-114.
[21] Yin, R.K. (2003) Case study research: Design and methods. 3rd Edition, Sage Publications, Thousand Oaks.
[22] Sandelowski, M. (1994) We are the stories we tell: Narrative knowing in nursing practice. Journal of Holistic Nursing, 12, 23-33. doi:10.1177/089801019401200105
[23] Patton, M.Q. (2002) Qualitative evaluation and research methods. 3rd Edition, Sage Publications, Newbury Park.
[24] Graneheim, U.H. and Lundman, B. (2004) Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trust-worthiness. Nurse Education Today, 24, 105-112. doi:10.1016/j.nedt.2003.10.001
[25] Polit, D.F. and Beck, C.T. (2004) Nursing research, principles and methods. 7th Edition, Lippincott Williams & Wilkins, Philadelphia.
[26] King, G.A., Cathers, T., Polgar, J.M., MacKinnon, E. and Havens, S. (2000) Success in life for older adolescents with cerebral palsy. Qualit-ative Health Research, 10, 734 749. doi:10.1177/104973200129118796
[27] Milliken, P.J. and Northcott, H.C. (2003) Redefining parental identity: Caregiving and schizophrenia. Qualitative Health Research, 13, 100-113. doi:10.1177/1049732302239413
[28] Lamb, M.E. and Sut-ton-Smith, B. (1982) Sibling relation ships: Their nature and significance across the life span. Erlbaum, Hill-side.
[29] St?lberg, G., Ekerwald, H. and Hultman, C.M. (2004) At issue: Siblings of patients with schizophrenia: Sibling bond, coping patterns, and fear of possible schizophrenia heredity. Schizophrenia Bulletin, 30, 445-458. doi:10.1093/oxfordjournals.schbul.a007091
[30] Veltman, A., Cameron, J. and Stewart, D.E. (2002) The experience of pro-viding care to relatives with chronic mental illness. Journal of Nervous and Mental Disease, 190, 108-114. doi:10.1097/00005053-200202000-00008
[31] Doornbos, M.M. (2002) Family caregivers and the mental health care system: Reality and dreams. Archives of Psychiatric Nursing, 16, 39-46. doi:10.1053/apnu.2002.30541
[32] Kaas, M.J., Lee, S. and Peitzman, C. (2003) Barriers to collaboration between mental health professionals and families in the care of persons with serious mental illness. Issues in Mental Health Nursing, 24, 741-756.
[33] Barnable, A., Gaudine, A., Bennett, L. and Meadus, R. (2006) Having a sibling with schizophrenia: A phenomenological study. Research and Theory for Nursing Practice: An International Journal, 20, 247-264. doi:10.1891/rtnp.20.3.247
[34] H?fner, H., Maurer, K., Ruhr-mann, S., Bechdolf, A., Klo sterk?tter, J., Wagner, M., Maier, W., Bottlender, R., M?l ler, H.J., Gaebel, W. and W?lwer, W. (2004) Early detection and secondary prevention of psychosis: Facts and visions. European Archives of Psychiatry and Clinical Neuroscience, 254, 117-128. doi:10.1007/s00406-004-0508-z
[35] Addington, D. (2009) Best practices: Improving quality of care for patients with first-episode psychosis. Psychiatric Services, 60, 1164-1166. doi:10.1176/appi.ps.60.9.1164
[36] Piippo, J. and Aaltonen, J. (2008) Mental health care: Trust and mistrust in different caring contexts. Journal of Clinical Nursing, 17, 2867-2874. doi:10.1111/j.1365-2702.2007.02270.x
[37] Nechmad, A., Fenning, S., Ternochiano, S., Treves, I., Fennig-Naisberg, S. and Levkovich, S. (2000) Siblings of schizophrenic patients—A review. Israel Journal of Psychiatry and Related Sciences, 37, 3-11.
[38] Titelman, D. (1991) Grief, guilt and identification in sib lings of schizophrenic individuals. Bulletin of the Menninger Clinic, 55, 72-84.
[39] Syrèn, S. (2010) Det outsagda och oh?rsammade lidandet. Tillvaron f?r personer med l?ngvarig psykossjukdom och deras n?rst?ende (in Swedish). Doktorsavhandling, Lin naeus University Dissertation Nr 6/2010. Linnaeus University Press, Sm?land.
[40] Montero, I., Hernandez, I., Asencio, A., Bellver, F., La Cruz, M. and Masanet, M.J. (2005) Do all people with schizophrenia receive the same benefit from different family intervention programs? Psychiatric Research, 133, 187-195. doi:10.1016/j.psychres.2002.12.001
[41] Cardno, A.G., Rijsdijk, F.V., Sham, P.C., Murray, R.M. and McGuffin, P.A. (2002) Twin study of genetic relationships between psychotic symptoms. American Journal of Psychiatry, 159, 539-545. doi:10.1176/appi.ajp.159.4.539
[42] Kinsella, K.B., Anderson, R.A. and Anderson, W.T. (1996) Coping skills, strengths, and needs as perceived by adult offspring and siblings of people with mental illness: A retrospective study. Psychiatric Rehabilitation Journal, 20, 24-32.
[43] Stein, C.H. and Wemmerus, V.A. (2001) Searching for a normal life: Personal accounts of adults with schizophrenia, their parents and well-siblings. American Journal of Community Psychology, 29, 725-746. doi:10.1023/A:1010465117848
[44] Muhlbauer, S.A. (2002) Navigating the storm of mental illness: Phases in the family’s journey. Qualitative Health Research, 12, 1076-1092. doi:10.1177/104973202129120458
[45] Lakeman, R. (2008) Family and carer participation in mental health care: Perspectives of consumers and carers in hospital and home care settings. Journal of Mental Health Nursing, 15, 203-211. doi:10.1111/j.1365-2850.2007.01213.x
[46] Teschinsky, U. (2000) Living with schizophrenia: The family illness experience. Issues in Mental Health Nursing, 21, 387-396. doi:10.1080/016128400248004

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